Hi All,
Eden has a busy month of appts., 6 doctors plus 2-3 therapies a week. But the news is good! If you haven't seen her for a while you'll be amazed--she's so much straighter and holds her head up so well. In PT (Physical Therapy) the other day she sat by herself for 25 seconds! She's even voluntarily reached for toys with her right hand a few times.
On Tuesday she visited the plastic surgeon for another follow up visit. She had been there 3 months ago and had showed progress, meaning the impulses to her facial muscles were stronger than previously. This time the impulses were even stronger. In fact, when we got there and talked with the doctor he said it's time to put a gold weight in her eyelid (the gold weight would allow her to blink her eye, which is very important to protect her eye and keep it healthy). He sounded convinced that Eden needed that treatment now. But after hooking up the electrodes and measuring the nerve impulses he changed his mind. She has improved so much in 3 months that he's hopeful she'll be able to blink on her own in the near future (he didn't give a time table). His assistant who does the electrode test agreed and was very encouraging and very hopeful. And they see a lot of facial palsy cases. She even claims she saw Eden blink twice while we were there. I might not believe her except that the computer showed a huge peak in impulse at the time she claims Eden blinked. So they were all excited and I left the office feeling very encouraged. We'll go back in 2 months.
Wednesday Eden had another hearing test. Her last one was 3 months ago and it was fairly inconclusive. It's a behavioral hearing test in which sounds are played at different decibles and frequencies out of a speaker on Eden's right side and if she turns her head to find the sound a toy in a darkened box lights up. Last time Eden didn't turn for most sounds, but developmentally I think the test was beyond her. This time, looking at Eden, the audiologist said, "this is a different baby from the last time I saw her." So developmentally she was much more capable of performing the test. She did ok turning to the sounds, not stellar. But when the audiologist used a device that transmits vibrations (sounds) through the bones of Eden's head Eden turned to the sound. This suggests some middle ear interference such as fluid in her ears. Middle ear interference was also confirmed by another test, a tympanogram, which measures how the ear drums move when air is puffed into the ear canal. Eden's eardrums did not move the way they should. Another test, oto-acoustic emissions, measures cochlear function and that was absent in Eden's left ear, but present in her right ear. This was the case 3 months ago too. So the next step is the have her ears checked (she gets her 12 month check up next week so we can do that then) and she sees the hearing doctor on the 27th. We'll see what they say about her ears and then talk to the audiologist again about whether/when to repeat the tests. So her hearing remains a bit of a mystery. We know she can hear out of her right ear--we're just not sure of the level of hearing. And why she is showing middle ear interference. She had a cold 2 weeks ago, but is asymptomatic now. Her speech is progressing, though she isn't making the sounds that developmentally she should be for her age. We're going to have a developmentalist assess her once a month and give us suggestions for speech and anything else that isn't already being covered by PT, Occupational therapy (OT) and Vision therapy.
All that may sound overwhelming to you, but we're taking it in stride. I get excited just thinking about how far Eden's come and the new things she starts to do almost weekly. I'm so pleased with her progress. Right now she's sitting in her booster seat, unpropped, feeding herself Cheerios, and "talking" to herself (or maybe me!). Just 2 months ago I wouldn't have expected this.
Theresa